Making Memories/Making Plans

Week after week, we return to our high risk OB/Gyn and hear over and over again that Lucy's condition has not changed, will not change, and that she is not expected to make it much longer. They base this on the fluid around her heart that has increased and the hydrops (fluid in her body) has increased as well. But our tiny dancer is hanging in there. Her heart is still beating, her legs and arms still pack a punch and she, depending on the day, still smiles for the camera and puts on a show.

So how do we take that in? Well, its not easy to say the least. Eric and I have said from day one of their prognosis, when they told us to start preparing ourselves and "making arrangements", that we were tired of being sad about the circumstances, and we would rather take this time to celebrate her, to enjoy her, and share her with our other children, to help make memories with her. In addition to that, we came up with the idea to try and help other families who have been in our shoes or in similar situations. We decided to start a team for the March of Dimes Walk.

Eric and I are part of an amazing church, with members who share a common love for Jesus. We are members of a CARE group within our church, with some amazing God-loving friends. Our church, our CARE group, our family and our friends have been our rock. When we initially heard to news on day one, Eric called a friend from our group and they jumped on arranging a prayer group at our house that very next night with our awesome pastor. Sometimes on our rough nights, the restless ones, I think about that prayer session and of everyone else that is pulling and praying for our sweet baby.

We have faith that God performs miracles, and we ask for a miracle with Lucia every single moment of her life. But we also have faith in God's will and if a healing miracle isnt what he has planned for us, we are obedient to Him to follow whatever path he is taking us on. We have made funeral arragements for our sweet baby and talked with our immediate family about the odds being less than 1% in her favor. But then we've also held on to Sophia's baby clothes and not taken down the crib in the nursery either.

So we will continue to sing sweet lullabies with Lucy, to make memories with her and Sophie and Dom, to cherish every second with her for however long those moments shall be.